Showing posts with label children's village. Show all posts
Showing posts with label children's village. Show all posts

Monday, August 13, 2012

More Schedules


Tonight was day 2 of "get ready to go back to school"  It was a rough one.  It was a rough day.  Its been a rough month.  But we're hanging in there.

Here's what I made for Ava to remember what to do at bed time.

Night time Routine

Its cute - its worth clicking on the link.  This is the same routine we had last year, but now its written down with pictures so she can remember.  I asked if she wanted velcro cards to remove what she'd done, but she said no.  So this is what we have.

Then I ordered a Medicine timer from Amazon.  I'll be able to record 6 sayings and add a timer - starting with "you have 5 minutes before bed."  Its supposed to go off every 5 minutes until you hit the alarm button.  We'll see if this works!


We've been using our seat belt cover quite a bit.  Its a great thing to have, but its distressing to see Ava meltdown when we're driving.  She knows how to unbuckle, so I have to be extra careful to remove anything in her reach that she can use as a tool.  Today, I didn't lock the belt tight enough around her & she wiggled out.  Luckily, I was stopped in a quiet neighborhood at a stop sign.  Unluckily, it was 102 degrees outside and we didn't want to hang out there all afternoon waiting for her to calm down.



Which brings me to this...our Calm Down Box.  I saw the idea on Pinterest (come follow me!) and Emma helped me make it right away.  Ava even got into making it, since its to be her box that's even better!  We used an old pencil box and added a straw, wedding bubbles, Halloween/birthday party PlayDough, a few crayons & a tiny note pad, a small squishy stuffed animal, a whistle, gum, life savers, BandAids, and a lip balm.  (The photo isn't ours, but its similar)



Hope these ideas help us!  The Calm Down Box didn't help today, but you have to use it BEFORE the meltdown starts.  We were too late.  Maybe next time I can catch it before it goes too far.

Oh, one last thing.  I'm going to start tracking meltdowns again.  We know they happen when there's a transition, but there may be more patterns happening that I'm not noticing.  Here's the file we use: Scheldule  I color in the boxes with a crayon/marker/colored pencil, and I keep it color coded by major activities (active play, calm play, school, sleep, electronics).  I color meltdowns in with a thick black sharpie.   She'll see her Neuro Dr in about a month, so this will be good info for the dr.

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Tuesday, May 1, 2012

Swim time

A few weeks ago, we were able to meet our therapist in the pool!  We are working on things that will help Ava be comfortable washing her hair & getting water on her face.  Right now, she'll do those things but you MUST have a towel near by to wipe off any drops of water.  It gets a bit exhausting.



The pool has 4 large "steps" that go across for different depths.  And it looks like a watering hole on the farm.  So cute.  Basically, Ava got to play with whatever water toys she wanted for our 40 minutes.
Then, just as she was supposed to get out, she was asked to inch herself along the wall.  It was all great exercise and I'm sure she can't wait to do it again.  



Just before we had this session, I came up with the very basic idea of letting her play in the shower.  For some reason I think of baths as playtime, and showers as time to get in & get out.  Then I thought, why?  Why not turn on the shower & let her do whatever in there?  The therapist LOVED the idea.  Ava LOVED the idea.  I LOVE that she's getting better with water.


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Tuesday, March 27, 2012

April is Autism Awareness month






Here is the text from their page:  

Join Autism Speaks in celebrating World Autism Awareness Day on April 2 and Light It Up Blue to help shine a light on autism. Whether it's your front porch or your local city hall, an office party or a banquet, the whole world is going blue to increase awareness about autism. 

  • Light It Up Blue, in its third year, is a unique global initiative to help raise awareness about the growing public health concern that is autism. Iconic landmarks around the world will Light It Up Blue to show their support. 

    Join us now and help shine a light on autism.


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Tuesday, March 20, 2012

Play therapy

Ava & I now spend 4 days a week at Children's Village.  I'm so glad its here in town!  What would we do if  we had to drive to Seattle?  Yikes!


I've joined the "Holland" group - its support for moms of Special Needs children.  I never thought I'd be one of these moms.  http://childrensvillage.memfound.org/holland  Its still a bit hard to get used to sometimes.  Ava looks so typical.  You'd never know she might have Autism.

Here are a few pictures of what goes on in Occupational Therapy.





This is a great little board on a lazy susan.  It just spins round & round.


The sensory bin was filled with scented cotton puffs.





The only bad part about OT is leaving.  Transitions are hard for Ava, but this is super fun...I don't want to leave either.  I can't blame her.  Tomorrow, we'll practice leaving - before we even get started.  Wish us luck...and PRAY!  We'll need all the help we can get.





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Wednesday, March 14, 2012

Tomorrow's girl is the same as today's

Tomorrow my child will be the same as she is today, and the same as she was yesterday.  I don't mean that she won't grow & change.  I just mean that whatever label she is given is just a label.  She's the same wonderful Ava that I adore.  No matter what.


Right now, I'm worried more that we won't get a label.  That it will still be "not otherwise specified."  I just recently learned that phrase.


We will meet with the neurodevelopmental doctor in a few hours.  Its 1am, and I can't sleep.  Even though I should.






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