Showing posts with label aspergers. Show all posts
Showing posts with label aspergers. Show all posts

Saturday, April 30, 2016

Growing and Changing

So much growth!

My cute girl is now 9.  She's a third grader....soon to be a 4th grader!  Last night, she participated in the school talent show.  This was a HUGE deal!  Kids on the autism spectrum don't get jokes the way the rest of us do.  It took a great deal of effort to find jokes she thought were funny and so did other people.

It also took quite a bit of explaining what a talent show is, what you could do, why it is not appropriate to train a cat to sit, and why eating rice with chopsticks is great but would be hard for the audience to see.

Here are her jokes:

Knock, knock.
Who's there?
Banana.
Banana who?
Knock, knock.
Who's there?
Banana.
Banana who?
Knock, knock.
Who's there?
Banana.
Banana who?
Knock, knock.
Who's there?
Orange.
Orange who?
Orange you glad I didn't say banana?

Knock, knock.
Who's there?
Interupting cow.
Interupting ......Mooo!!!

Why is six afraid of seven?
Why?
Because seven, eight, nine.

Why do cows have bells?
Why?
Because their horns don't work.


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Monday, August 20, 2012

Don't worry, she'll be fine.

Don't worry, she'll be fine.  That's what everyone told me.  So here's what fine looks like in autism world:

Let's start with bedtime...that's part of getting up.
6:30pm - Ava should have been doing her kitchen chore, to be able to take a bath & start the bedtime routine.
7pm - the kitchen chore was started
7:30 - bath time
8 - meltdown over what to wear the next day.  She was wanting to wear a halter dress (not just against school dress code, but against the Mom & Dad school code too)
8:30 - read a story to baby sister as Ava listened in
8:45 - Ava has another meltdown, insisting I read her the same story I'd just read
9pm - Ava comes downstairs asking for playtime
9:30 - once she laid down, she fell right to sleep
Slept all night
6:30am - started trying wake her up, she moans at me
Continue the process every 5 minutes until she bounces out of bed at 7am screaming "Where is my dress??!!  I TOLD you not to wash my dress.  I don't want my dress washed."  And melts in to a screaming puddle of tears.
The dress fight continues until 7:40 when she finally agreed to let me iron her dress.  (She insisted it was wrinkled)  Just before, she must have eaten her toast...I can't remember now.  The bow never got fully pressed - how do you press a bow that's been stitched down?  I did my best!
8:08 - Ava starts brushing her hair in a frantic rush to get out the door so she can walk.
8:25 - Some how the dress & shoes are on - we're too late to walk.  We take Ava's picture & she gets into the car willingly, forgetting about walking.
8:32 - we walk into the classroom & everything is normal

Then it starts all over again....
11:25 - I peek into the classroom, but can't see Ava.
11:30 - Ava is released to go home, the teacher says she had a great time.

11:31 - We exit the school and enter the first afternoon meltdown.  Ava is whining about a lost money.  I keep telling her I don't see it, you can't take money to school because this is what happens.


11:40 - we're still in the lawn trying to coax Ava into the car.  Big sister heads back in to use the bathroom.
11:50 - I'm tired of this game & try to pick Ava up to carry her to the car.  This, of course, brings on a full meltdown.  Every parent is staring at us (there weren't many).  Ava is forced into her seat & we used the safety cover on her buckle.  She immediately starts trying to get out of her seat.  Half a block later, she's out.  I pull into another one of the school's lots.  By the time I'm out of the car, she has BOLTED!

Imagine this on a sidewalk, without the smiles.

  There is my beautiful girl, running away from me.  Down a busy street.  I ran faster than I've ever run before (I'm NOT a runner), praying all the way.  It took about 50 feet, but I caught her & took her back to the car.  I hit the child safety lock on the door & struggle to get her back into her seat.  We continue home.  No more than 2 blocks later, she's out again.  This time, she's out for blood.  She is hitting me with her fist, with all her strength, while I am driving.  I just keep going.  She's a danger to everyone at this point, but we live 4 blocks from school and I just want to be home.
12:02 - we pull into the driveway.  I go inside to get her a water bottle (she threw her's at me & screamed) and an ice pack.  I go back outside to find she's locked all the car doors.  Windows are down, so I reach in and unlock.  She is then calmly (between sobs) tell me more about the money.  I still don't get it.  I still didn't see the money she'd dropped.  But I apologize, and we head inside as if nothing had happened.

Its now 2pm.  We've had 3 more meltdowns since then, over minor issues like a sister stealing a favorite blanket, or someone looking at her.  We'll have nap time in just a few minutes, but first I needed to vent.

Don't worry about us though.  Things are fine, remember?




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Meltdown Schedule Explained

Tomorrow (technically today as I'm writing at midnight) is Ava's first day of school!  She's in for 1/2 days this week, two days off, and then full time on next Wed.  I'm scared.  Nervous.  Excited!  And I can tell she is too.

I've been tracking our schedule, and with it Ava's meltdowns.  She has a lot of them.  The good news is, Daddy & I have gotten better at helping prevent them.  This doesn't mean she's spoiled and always gets her way.  She has Autism.  Sometimes she just doesn't get it.  Sometimes we do change our minds & it looks like we're giving in.  All the time, with every kid, you have to pick your battles.  We fought a BIG one today.

Ava had a meltdown that lasted an hour.  I'm not exaggerating.  Sixty +/- minutes!  Over walking the dog.  You see, we were headed for a walk in the mountains.  Both of the big girls wanted to hold the dog's leash.  So we played rock-paper-scissors to decide who would walk the dog up the hill, and who would walk her back down the hill.  Ava lost.  We're working hard with her therapist on making a plan & sticking to it.  This was one I wanted to change, but I held firm.  Poor Daddy & Omp (our special name for Grandpa) were left behind.  It was heartbreaking - pounding on the window, screaming so loud we could hear her 3 cabins away, drooling because she was so upset.  I can't imagine how exhausted she was from it.  A meltdown takes a lot of energy - both emotional & physical.

Here's our chart of the last week.  Sunday was the meltdown.  All meltdowns are in black, but you can see how short most of them are.  Last year, when we first started therapy, they could easily be 2 hours long.  And they were 30 minutes at a minimum!  THAT is improvement.  Even if our outside world doesn't see it - we do.

Its all color coded.  Purple is sleeping; Green is active play, household chores, being outside, running around;   Blue is quiet play, reading books, quiet imaginary games; Red is anything tv, computer, ipod related (not counting using the ipod for music).  And of course Black is the meltdown.

See the two days where I can't remember what happened?  They were either really good.  Or really bad.  I honestly couldn't remember.  I now fill my chart out several times a day.  We used to always see meltdowns during transitions - sometimes they occur because of a transition.  Other times we need a transition to get Ava OUT of a meltdown.

Wish us luck & say a prayer.  We're going to need it!  It will be interesting to see how our chart changes with school starting up.





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Wednesday, June 27, 2012

Organization 2012



We've been working on making house changes like crazy!!  I've been sewing, decluttering, organizing, creating schedules, all on top of our normal routines.  Its really going to help Ava with her Aspergers & Sensory Processing (visual overload is a BAD thing!!)


Here's what I've made for the dresser - I'll have the laminated & put on with Command adhesive. Follow the link to print your own set.   Dresser Labels  (Sorry moms of boys, these are pretty girly!)  There are labels for everything in the girls' drawers - I printed them three times so that no girl is left out!


I found some pretty blank tags on line, then I Googled our favorite toys, add the photo & text and have personalized toy bin labels.  Yes, back to laminating!!  I love laminated things!!  I've been going to the office store, but I'd love to own my own machine!!  (they're really not that expensive!)  Here's the link to our labels:  Toy bin labels  And here is the (source) for the blank labels.  Poke around on the site, there were rectangles, circles and several colors!  I'm not done yet, but I'm thinking I'll punch a hole in each & tie with a ribbon to the toy bins.




I've made schedule cards for Ava.  Again, I printed them & then had them laminated.  This time, I put velcro on the backs and attach them to a vertical velcro strip that hangs on the fridge.  Here is the link to print what we use.  Schedule cards
www.bumblebabymommy.blogspot.com

I've also made a written schedule for me & big sis Emma to be able to read, so we can set up the velcro chart.  I got the schedule here (source).  But it didn't have the text!  Bummer...so I added my own text.  Follow this link to print our schedule Summer schedule


Have fun getting your kids on track for summer.  Even if we don't follow the schedule every day, it really is helping us!







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Tuesday, May 1, 2012

Swim time

A few weeks ago, we were able to meet our therapist in the pool!  We are working on things that will help Ava be comfortable washing her hair & getting water on her face.  Right now, she'll do those things but you MUST have a towel near by to wipe off any drops of water.  It gets a bit exhausting.



The pool has 4 large "steps" that go across for different depths.  And it looks like a watering hole on the farm.  So cute.  Basically, Ava got to play with whatever water toys she wanted for our 40 minutes.
Then, just as she was supposed to get out, she was asked to inch herself along the wall.  It was all great exercise and I'm sure she can't wait to do it again.  



Just before we had this session, I came up with the very basic idea of letting her play in the shower.  For some reason I think of baths as playtime, and showers as time to get in & get out.  Then I thought, why?  Why not turn on the shower & let her do whatever in there?  The therapist LOVED the idea.  Ava LOVED the idea.  I LOVE that she's getting better with water.


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Tuesday, March 27, 2012

April is Autism Awareness month






Here is the text from their page:  

Join Autism Speaks in celebrating World Autism Awareness Day on April 2 and Light It Up Blue to help shine a light on autism. Whether it's your front porch or your local city hall, an office party or a banquet, the whole world is going blue to increase awareness about autism. 

  • Light It Up Blue, in its third year, is a unique global initiative to help raise awareness about the growing public health concern that is autism. Iconic landmarks around the world will Light It Up Blue to show their support. 

    Join us now and help shine a light on autism.


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Tuesday, March 20, 2012

Play therapy

Ava & I now spend 4 days a week at Children's Village.  I'm so glad its here in town!  What would we do if  we had to drive to Seattle?  Yikes!


I've joined the "Holland" group - its support for moms of Special Needs children.  I never thought I'd be one of these moms.  http://childrensvillage.memfound.org/holland  Its still a bit hard to get used to sometimes.  Ava looks so typical.  You'd never know she might have Autism.

Here are a few pictures of what goes on in Occupational Therapy.





This is a great little board on a lazy susan.  It just spins round & round.


The sensory bin was filled with scented cotton puffs.





The only bad part about OT is leaving.  Transitions are hard for Ava, but this is super fun...I don't want to leave either.  I can't blame her.  Tomorrow, we'll practice leaving - before we even get started.  Wish us luck...and PRAY!  We'll need all the help we can get.





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Wednesday, March 14, 2012

Tomorrow's girl is the same as today's

Tomorrow my child will be the same as she is today, and the same as she was yesterday.  I don't mean that she won't grow & change.  I just mean that whatever label she is given is just a label.  She's the same wonderful Ava that I adore.  No matter what.


Right now, I'm worried more that we won't get a label.  That it will still be "not otherwise specified."  I just recently learned that phrase.


We will meet with the neurodevelopmental doctor in a few hours.  Its 1am, and I can't sleep.  Even though I should.






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